Author’s Note: As the global epidemic of HIV/AIDS continues to spread, Uganda remains one of the hardest hit countries. Like Monica, other young women at ChildVoice and their children are affected by this deadly disease by no fault of their own. In 2009, according to the Uganda AIDS Commission, approximately 1.2 million people were reported to be HIV infected; 124,000 people were newly infected; and 64,000 people died due to AIDS related illnesses. In this month’s story, Monica talks about the difficulties of living with this illness.
Living with HIV
I have to live with this thing of HIV. Worse even, my child lives with it too. It is making our lives even more difficult than they already are. We struggle slowly, bit by bit without getting too down because we want to continue and have a happy life.
It is always on my mind. How do you stop from thinking of it? When I found out my two-year-old daughter, Blessing, was positive too…that was one of the worst days. She was getting so small, not eating or making noises except to cry. I even wanted to leave the ChildVoice center to just go home and die. With prayer and support from my teachers, I was able to see differently, and I decided to stay.
When I went home for Christmas, I was reminded how difficult life is there. Sometimes your neighbors can do bad things against you. Sometimes there is not enough money to buy the simple things you need. We don’t even need so much, but there is not enough for even those things. It is a hard life there. Because of the disease, I have to travel very far each week to town so that I can get my medicine from ChildVoice. I think I didn’t realize how much CVI helps me there. When you are [HIV] positive you need to take medicine all the time and at the right time; you cannot miss it. I don’t know what I would do without the medicine. It is really keeping us both healthy and alive. I worry what I will do one day if there is no medicine.
Staying Positive for the Future
I just pray and know that I must keep strong and try to focus on the good things in my life for the future. I want to finish up my program well at CVI. I want to work hard, to get all of the knowledge that I need so that when I leave, Blessing and I can have a good future. I’ve learned many things so far, but I feel I’m not yet done. I can see good changes taking place in my life. I must remain grateful for the good things in my life so that I can get through. Life has been hard, but we can still be happy.













